Annual Membership Drive for the National Family Association for DeafBlind

The National Family Association for DeafBlind (NFADB) has been supporting individuals who are deafblind and their families for over sixteen years. Membership is open to anyone with an interest in deafblindness, including people who are deafblind, family members, friends and interested service providers and professionals. We encourage you to visit NFADB’s website for more information about the organization and about how to become a member!

National Family Association for DeafBlind - A non-profit organization empowering families to advocate for individuals who are deaf-blind. Connects families through Facebook, webinars (in English & Spanish), a toll-free number, and conducts a semiannual online course on the role of interveners in educational settings.

American Association of the Deaf-Blind

National Center on DeafBlindness (NCDB)

    • NCDB Library - A large collection of online resources on all aspects of deaf-blindness organized by topic. Some of the resources are aimed at families; others at professionals or researchers.
    • NCDB For Families - Page with resources especially for families, including our new Family Matters video series (a new video story will be posted every few months, each featuring a different family).
    • NCDB Families Matter Video Stories - The Family Engagement Initiative regularly publishes web-based stories about children who are deaf-blind and their families.
    • NCDB Facebook - Follow NCDB on Facebook! We post news stories, interesting resources, and weekly tips and highlights including family fun facts (Fridays).
    • Literacy for Children with Combined Vision and Hearing Loss - This site is for individuals interested in beginning or enhancing literacy instruction for children with combined vision and hearing loss. Its content is also designed to improve literacy instruction for children with multiple disabilities and other complex learning challenges.

Affordable Connectivity Program

American Printing House for the Blind

Canine Companions for Independence

Center for Parent Information and Resources - Every state has at least one federally funded parent center, which provides parents of children with disabilities information about local educational services and their child's rights under IDEA. Visit this site to find your local parent center and browse general resources about special education.

Education Resources Information Center (ERIC)

FamilyConnect - A site from the American Foundation for the Blind for parents of children with visual impairments.

Guiding Eyes for the Blind, Inc.

Hands & Voices

Helen Keller National Center

iCanConnect - iCanConnect is a national program with local contacts to help people stay connected with friends, family, their community, and the world. iCanConnect provides free equipment and training to people with both significant vision and hearing loss who meet disability and income guidelines.

Legislative Information

National Center on Education Outcomes Video Channel

iPad Apps for Learners with Complex Additional Support Needs

Perkins School for the Blind

Perkins eLearning  - Videos, webinars, online courses, and other resources designed to provide professional development to teachers of children with visual impairments or multiple disabilities.

Progress Center Student Led IEPs Webinar

United States Department of Education

WonderBaby - An excellent site for parents of young children with visual impairments or multiple disabilities. It's made up of articles and blog posts written by parents on a wide range of topics and includes many tips and activities.

 

National Resources for Causes of Deafblindness

CHARGE Syndrome Foundation
A non-profit organization that works to improve the lives of people with CHARGE syndrome through outreach, education, and research. Supports families via a director of outreach, webinars, a provider database, extensive online resources, and an international conference every two years.

Cornelia de Lange Syndrome

Dandy-Walker Syndrome

Down Syndrome Family Resource Center

Goldenhar Syndrome

Norrie Disease

Patau Syndrome

​Stickler Syndrome

Usher Syndrome Coalition - An advocacy and support organization where you can connect with other families, find information on the latest research and legislation, read blog posts, sign up for the newsletter, and join advocacy efforts.

Wolf-Hirschhorn Syndrome